What Preventive Treatments is Sienna Currently Following?
o Celebrex (50 mg capsule 2X daily with food – we break it open and dissolve the powder in tart cherry juice as she isn’t old enough to swallow pills).
o Ketaprofen Gel (20% concentration) applied directly on a flare-up 2-3X a day.
o Singulair (4mg cherry chewable 1X daily at night)
o Gastrocrom (4X daily)
o Multivitamin gummies
o Omega 3 gummies
o Probiotic gummies
o Vitamin C gummies
o Curcumin (400 mg 3-4X daily, mixed with peanut butter)
o Parsley (900 mg 3X daily, mixed with peanut butter)
o Tart Cherry Juice Concentrate (2 tsp daily – it is how we give her the Celebrex but it is also known for anti-inflammatory benefits)
Designed with a focus on limiting sugar and emphasizing food with anti-inflammatory benefits.
Sienna wears a protective helmet pretty much all the time that she is awake.
(the above treatment plan is based upon our own research and is provided solely for other FOP patients’ reference and discussion. It is in no way endorsed by medical professionals.)