THE SIENNA FOUNDATION

Raising Awareness and Funds to Cure FOP (Fibrodysplasia ossificans progressiva)

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  • About Sienna
    • Story
    • Treatments
    • Updates
      • 2012-October Update
      • 2012-September Update
      • 2012-August Update
      • 2012-July Update
      • 2012-June Update
  • About FOP
    • General
    • The Big Toe Knows!
    • References
    • Path to a Cure
  • How To Help
    • Donate
    • Fundraising
      • Sienna’s Splash Swimathon
  • Donate

FOP Background References

International FOP Association
Canadian FOP Network
FOP Action UK
Overview of FOP (UCSF Benioff Hospital)
Overview of FOP (How Stuff Works)
How Can A Genetic Mutation Cause Muscle to Turn Into Bone? (Scientific American, December 2, 2009)
A Few Hundred People Turned to Bone (The Atlantic Magazine)
Hear Dr. Kaplan speak about FOP facts, insights and treatment methods:

FOP Treatments (How Stuff Works)

Additional FOP References

2012 FOP Annual Report (Perelman School of Medicine, May 7, 2012)

2012 University of Oxford FOP Research Team 2012 Report (University of Oxford, April, 2012)
2012 IFOPA Facts in Brief (IFOPA.org, 2012)
IFOPA Document Repository
UCI med student races time to heal his rare disease (Orange County Register, October 10,2008)

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