THE SIENNA FOUNDATION

Raising Awareness and Funds to Cure FOP (Fibrodysplasia ossificans progressiva)

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Path to a Cure

  • University of Oxford FOP Research Team 2012 Report (University of Oxford, Summer, 2012)
  • Nobel winner gives hope to boy for cure from rare disease
  • Potent Inhibition Of Heterotopic Ossification By Nuclear Retinoic Acid Receptor Y Agonists (Nat Med, April, 2011)
  • Allele-Specific RNA Interference in FOP Silencing the FOP gene (Gene Therapy, December 1, 2011)
  • Penn Study Describes First Proof of Principle for Treating Rare Bone Disease (Perelman School of Medicine, November 4, 2011)
  • Potential Treatment Found For Debilitating Bone Disease in Wounded Soldiers and Children (News Release for Nature Medicine, April 3, 2011)
  • A Scientist and His Zebrafish Offer the Best Hope for a Cure For a Rare and Disabling Bone Disease (Vanderbilt Medicine, January 2011)
  • Penn Researchers Discover Gene That Creates Second Skeleton (Penn Medicine, April 23, 2006)

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