About FOP

About FOP

o FOP is an abbreviation for Fibrodysplasia Ossificans Progressiva.

o FOP is an extremely rare and debilitating medical condition where bone forms in muscles and other soft tissues of the body.

o A variation of FOP called Heterotopic Ossification (HO) strikes nearly 65% of wounded military personnel and 10% of orthopedic surgery patients and is triggered by severe injuries.

o During a flare-up (characterized by large swellings), extra bone can form across the joints, restricting movement.

o FOP is a progressive disease and currently there is no cure.

o It has no ethnic or religious pattern.

o It does not affect a person’s intelligence.

o FOP affects approximately 1 in 2 million people worldwide.

o There are approximately 700 confirmed cases across the globe from a statistical estimate of 2,500.

o There are nearly 300 confirmed cases within the United States of America.

International FOP Association