June 29, 2012

Thank you to all of Sienna’s friends (new and old) for supporting us and joining our battle to cure FOP!   Sienna is having a good week, singing “Happy Birthday” to everyone regardless of their actual birthday, and has just a couple of active flare-ups remaining on her back.  We are hoping they go away soon.

We are proud of our first week’s statistics:

o   Approximately 10,000 page views generated by over 500 visitors across the globe: Africa, Asia, Australia, Europe, North America and South America. The only continent we have not yet reached is Antarctica.

o   Over 50 donations to the IFOPA totaling in excess of $12,500.

o   Nearly 400 Facebook “Likes”.

o   Fundraising event plans are in the works so please stay tuned for updates in the next few weeks!

o   Thank you to everyone who has donated and/or shared our site!  While the initial numbers are fantastic, we need to keep up the momentum as this marks the tip of the iceberg in what we know can be done to conquer FOP!

o   Please keep sharing and getting the word out about TheSiennaFoundation.org, we all really appreciate it!

Sienna Says: “Thank You, Friends!”